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patients about what’s important to them before
deciding on the new protocol. “Standardization
is very consistent with an agenda that pushes
for more shared decision making and getting
patients involved in the design of care delivery,”
Dr. Skootsky notes.
To enhance the value of the care it provides
for common conditions, the UCLA Department
of Urology has conducted research on patients’
preferences and their experiences with treatment
at UCLA. The initiative began with a focus
on benign prostatic hyperplasia (BPH), a
noncancerous enlargement of the prostate that
is common as men get older and can lead to
bothersome urinary symptoms. “We were offering
at least five surgical therapies for that indication,
and patients were often confused about what to do,
which was a source of dissatisfaction for many of
them,” says Christopher Saigal, MD ’94 (RES ’00,
FEL ’01), MPH, vice chair of the department, who
has headed the effort.
The survey of patients revealed some surprising
findings that led to changes, Dr. Saigal says. For
one, patients were more concerned than the UCLA
urologists realized about having to use catheters
at home after surgery. To address that concern, the
department created a video on catheter management
that became the most-widely visited page on its
website, drawing thousands of views each month. The
department also instituted shared-decision-making
processes to assist patients in coming to treatment
choices consistent with their preferences and the
evidence, and it produced a video for referring
physicians on how to optimally manage patients
with BPH prior to referral for potential surgery.
Finally, drawing from the EHR database,
dashboards have been created for individual
physicians comparing their outcomes across
BPH therapies. Measures include infection rates,
emergency-room visits, hospital-readmission rates
and the rate of patients returning to medical therapy,
as well as each physician’s costs for delivering each
service. This enables the physicians to make value-
based recommendations to their patients, Dr. Saigal
notes. Similar efforts are underway for prostate-
and bladder-cancer treatments.
“Standardized protocols, enabled by the immense
amount of observational data we’re getting through
electronic health records, can make a big impact on
improving care,” Dr. Saigal says. “But they have to be
informed by patient input and designed with patients’
goals in mind. Patients have different preferences,
and the pathways must incorporate those.”
Daniel Hommes, MD, PhD, director of the
UCLA Center for Inflammatory Bowel Diseases and
quality director of UCLA’s Division of Digestive
Diseases, says that the value-based care pathways
his group has instituted are “creating structure out
of organized chaos.”
For a variety of chronic diseases — starting with
inflammatory bowel disease and then moving on
to conditions that include other gastrointestinal
disorders, as well as diabetes, chronic back pain
and rheumatoid arthritis — Dr. Hommes’ team
has employed national and international practice
guidelines as frameworks for standardized-care
pathways. Using these as starting points, providers
learn on a patient-by-patient basis which elements
are most effective and where more emphasis needs
to be placed. Then they adjust their patient’s care
plan each year through a feedback loop informed by
a “value quotient” — a measure that incorporates
the annual burden of the patient’s disease, patient-
defined quality of life and work productivity,
divided by the cost of the care.
“When patients are running around from
doctor to doctor getting all kinds of tests, that’s
organized chaos,” Dr. Hommes says. “We start
from the literature. Then we fine-tune the patient’s
care each year based on the value quotient. We
need those standardized-care pathways to capture
meaningful data that will enable us to move toward
personalized-care pathways.”
The idea that standardization can be used to
enhance care based on patient preferences and
experiences isn’t surprising to Dr. Yeh. “This
isn’t one-size-fits all. The goal of standardization
is to make sure the right patient is getting the
right care in the right place at the right time for
the right cost,” he says. “People complain that
standardization promotes ‘cookbook medicine.’
What’s wrong with having a cookbook? Try to find
one household that doesn’t have one.”
“Standardization is very consistent
with an agenda that
pushes for more
shared decision
making and getting
patients involved
in the design of
care delivery.”
Standardization makes for a more-
consistent product, and that “almost
by definition, means higher quality,”
says Dr. Samuel A. Skootsky.
Photo: Ann Johansson
Dan Gordon is a regular contributor to U Magazine.
U MAGAZINE
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